Rachel Siew Suet Li Trust Fund (RSTF) has been set up to raise necessary funds for Rachel to undergo weekly lifelong treatment that allows her to be strong enough to work and continue her mission – i.e. for RSTF is to educate, advocate and represent affected individuals with Rare Diseases like Rachel’s.
As the Community Advocate for Rare Diseases and part of the MIRM team, she aims to grow RSTF as a major force creating the needed AWARENESS on this RARE condition.